Thursday, June 18, 2009

Yesterday I had my first appointment at the Fibromyalgia Centers of America. I honestly still don't know my feelings on it yet. The doctor examined me, took a spinal x-ray, and did some sort of temperature thing to see if any of my nerves were putting off heat, which could signify a pinched nerve. My back was lit up like a Christmas tree. The doctor said he would go over the x-rays and see what he could do to help treat my fibro, or if he could. I felt like the appointment was a bit too slick. The doctor seemed to care and know a lot about fibro, but I don't know. I'm going back on Friday. I honestly just don't know. I'm worried that he's one of the jerks that are trying to make a quick buck off of someone's fear and despair... Kolton is going with me again on Friday to help me.

This morning I woke up in a lot of pain. My back and legs just ache beyond belief. I'm so tired of this. I feel drained and exhausted... It is as though someone took a hammer and beat me while I was asleep. I don't want to take any medicine for it though. I'm just so tired of not being alert and aware of what is going on. I'm having a rough day. Ow... Now breathing hurts! Stupid back. Stupid fibro.

I'm doing my best to stay positive... It's just one of those really hard days. It's been raining all week and it's supposed to rain again tomorrow. Yuck.

Wednesday, June 17, 2009

My vertigo has not bothered me at all yet today! I am taking the Meclazine still to be on the safe side since I have to drive later, but yay! Today is my appointment at the Fibromyalgia Centers of America. Kolton is going to come with me! I am feeling okay today... It is raining right now and it's supposed to rain still tomorrow, so I'm slightly achy, but it's not that bad at all. Yay! I didn't realize how draining the vertigo has been until now. I have so much more energy today!

If you have been following me on Twitter, you have probably noticed that I am in support of the Iranians and that I have been helping spread the news. I am not from Iran, I am just a student living in America who wants to support their fight for justice. As someone on Twitter put it last night (sorry, I can't remember who!), this isn't about the candidates any more - it's about justice and freedom. Today I am wearing green in support and I just changed my blog to green. I wanted to go to the rally in Chicago last night (I live about 25 miles from downtown Chicago), but I wasn't feeling well enough. If another one happens, I want to go and show my support. Some people are confused as to why I am doing this... I can't just sit here and do nothing when people are dying and being beaten for saying that the election was fixed. I don't support any of the candidates in Iran - I support peace.

Tuesday, June 16, 2009

Last night I began taking Meclazine for the vertigo. It didn't help at all. I wasn't able to sleep because I became wide awake and then the vertigo got bad again. However, I woke up this morning, took the Meclazine again, and I have been almost vertigo-free today! I feel very drained and weak though... It was raining for most of the day, so I'm achy.

I'm really tired so I'm going to go to sleep. I see the chiropractor for the first time tomorrow. Wish me luck!

Monday, June 15, 2009

Dear Jerks,

Just because I am young does not mean I am healthy. I park in a handicap spot only when I need to, not because I want to. I am not taking advantage of the government. If you feel that you deserve to park in a handicap spot, why don't you either go sit down with your doctor and discuss it with them or why don't you try to live with something like this? Sure, I am 20. I'm a college student. I'm young. But that does not mean that you can berate me and scream at me for a long time in a parking lot while I'm struggling to get out of my car. Yelling at a sick girl who obviously looks ill is not going to accomplish anything!

If you see someone using walking assistance, whether it be crutches, a cane, a walker, or a wheelchair - get out of their way! There's a reason they're using it! If you and your friend thought it'd be fun to try to get me to whack you with my cane by walking in front of me and cutting me off, you were wrong. The only thing it succeeded in doing was throwing me off balance and almost fainting. Calling me a "crippled bitch" and laughing while I walked away in tears, struggling to regain balance only means that you are both rude and mean people.

I really wish that people who don't understand could go through just thirty minutes of this. I know that they most likely don't realize what they're doing, but come on! Common sense!

Learn some manners and stop it.

Sincerely,
Your Local Fibro Girl
Hi everyone. I'm sorry my posts have been sporadic, this vertigo is getting to me. Today I had an appointment with a doctor my parents see about the vertigo. He isn't sure what is going on. I felt like I was rushed out of the office, which didn't make me happy. He's a good doctor, but I'm hesitant to make him my primary. He gave me a prescription for something that starts with an 'a' but I'm not sure what it is yet. He said it might help the dizziness.

When the vertigo gets bad, my ears ring and I get this weird tingling sensation on my tongue, behind my eyes, and at the back of my head. It's really weird. I told the doctor about it and he sounded puzzled. Has anyone dealt with vertigo like this before? What type of doctor did you see? What did you do to make it better, or at least more manageable?

Today I called the Fibromyalgia Centers of America to see if my insurance would cover a visit, on a long shot. It turns out it does! I have an appointment with them on Wednesday. The doctor is a chiropractor, which I'm slightly wary about. I figured it wouldn't hurt to at least hear what this doctor has to say.

Does anyone else live in the Chicago-area that sees specialists for fibro? I've been trying to find a new doctor without success. Any suggestions would be very much appreciated!

I hope everyone has a great night! I'll update you guys on what else has been going on tomorrow.

Sunday, June 14, 2009

My vertigo was really bad today. Woke up super sore. I way over did it yesterday. Almost fainted again. I'm so tired. 4 AM here. I can't lay down, room spins too much. Hoping I can pass out soon. Sorry for short post, too tired, foggy, and flared to think.

Saturday, June 13, 2009

Doctor Appointment and Disappointment

Today I had my pre-op physical with my primary doctor, who I have seen for over 18 years now. I called in the morning to confirm the appointment time and I was told that I didn't have an appointment, but I had an appointment last Friday, which I supposedly missed. This was impossible! I had class last Friday and I wasn't in my home town, there is no way I would have scheduled an appointment for then. After fighting with the nurse, they fit me in at 1:30. (I went back and checked my phone logs -- I call all my doctors at once for appointments and I called on the 9th to schedule this appointment. How could I have made the appointment on the 9th for the 5th?) Kolton came over, picked me up, and off we went to the doctor's. We got there and after a lot of waiting, got in to a room. The nurse was very standoffish and rude, I felt as though she really didn't care at all. After the physical, I told my doctor what has been going on with the vertigo and fainting... He completely blew me off, even though this has never happened before. I was told to drink some Gatorade and call him next week if it is still there. Ridiculous. I really don't think I'm returning to that office again, which really makes me sad...

After the appointment, Kolton and I went to a park that used to be a fairground in the 1900's. I love going out there, it's so interesting! I got bit by a bunch of fire ants though. We got back to my house and then gardened for my mom. I mowed part of the front lawn! That was the first time I've mowed in over five years! I also made dinner (grilled chicken, potatoes, and corn!), which wiped me out. I way over did it today... It was kind of nice though, I felt almost normal. I'm paying for it now though. I'm so sore and now I can't sleep because of the pain. I'm so sick of taking the painkillers... I'd rather tough it out tonight.